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[Table] I am a 23yr male with a rare disorder called Cutis marmorata telangiectatica congenita and extreme body asymmetry. AMA
**Verified?** *(This bot cannot verify AMAs just yet)* **Date:** 2012-03-22 **[Link to submission](http://www.reddit.com/r/IAmA/comments/r8ib4/)**(*Has self-text*) **[Link to my post](http://www.reddit.com/r/IAmA/comments/r8ib4/tabledresser/c4401xb)** Questions|Answers :--|:-- [To 4chan? Now I just think you're a masochist lol. I bet it cost a lot to purchase a wheelbarrow large enough to carry your gigantic balls.](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43w37q?context=5)|Honestly they are not as bad as you would think. I posted to /soc/ not /b/ so radically different people. That was actually a really fun thread that lasted a good couple days and inspired a lot of people to stop complaining about things for all of about 5 minutes. I even got my own chan name from them. To me thats about as much respect as you can get from 4chan. [I saw that thread, you posted your cock too.](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43yj6x?context=5)|Its 4chan. You have to post your cock. [Holy fuck, I'll never be able to call you by your name anymore. ](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c44n14j?context=5)|Aww you can call me whatever you want. [Is it weird that I'm curious as to what it looks like? For *science*, of course.](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43zkr8?context=5)|Its already posted on here. Look around for it! [Does that mean half of your penis is larger than the other half? If so, by how much?](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43s9i3?context=5)|Yeap sure does. Why its hard to see because of foreskin and such if you feel it you can tell where it bulges more on the left side. The length however is only off by maybe a couple millimeters. [This just takes the bizarre factor to a whole new level. I am very sorry if this sentence offends you. That the body is typically so "precise" that the penis can be affected like this is astounding.](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43tzlq?context=5)|No offence at all man. Its pretty freaky but yeah straight down the middle. Its pretty amazing. [When you get a boner does it hurt? I can imagine the big side getting bigger than the small side and making it bend or something. ](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43v9wq?context=5)|Nope not at all. It works pretty well and cant say i have ever had any serious complaints about it from others. [Yo baby you want the thick side or thin side tonight?](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43yqnt?context=5)|Damnit i laughed at this more than i should have. Props to you. [I bet the ladies at very least want it in them to figure out how it feels hahahahahah wish I had curiousity on my side.... Props.](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43wfxo?context=5)|The second girl I was with ended up playing with it for about 10 minutes just saying whoa. Im sure it feels a bit different. [Just curious, are you still using any drugs at all?](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43xmsk?context=5)|No not anymore. I think in the past four years its been maybe two pipes and a tab of x? I pretty much stopped. Just not for me anymore. [Not an insult, but if you can get laid with your condition, than the theory that it just takes the right amount of confidence and personality has been completely confirmed.](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43ym3c?context=5)|No insult at all. Really so long as you can be comfortable with yourself its just finding someone. |Using this line again but really. No matter what you look like, Someone will find it interesting enough to fuck. [I feel terrible for asking this but how did you possibly get a girl, let alone more than one with your condition?](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43ws6e?context=5)|Confidence and just being a decent person. Basically it comes down to this. No matter what you look like, Someone will find it interesting enough to fuck. [Just wanted to say you are fucking awesome and I greatly appreciate you posting this. Until this point I had no idea this sort of condition even existed. Good luck with everything in the future, but it sounds like you're doing well already. Cheers, bro.](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43xya0?context=5)|Thank you very much! Hope you enjoy reading. [Bullshit, I look amazing and am only 48% douche, yet I still struggle to find partners. Of course, it doesn't help that I meet roughly 2 people a year.](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c4453cb?context=5)|Well get out and meet more people then! [So true, a girlfriend of mine is way into amputees and little people, and various other deformities. A guy we know has a third nipple and she's been hot for him for years, lol.](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c440eg2?context=5)|Well if she ever becomes your ex you let me know. [Excellent attitude, and you're right. Mae West used to say "a man can be short, fat, and balding, but if he has fire, women will love him" Sounds like you've got a lot of fire in you. ](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43yjkp?context=5)|Thats pretty much the attitude to have. I try my best. [How do you deal with the clothes issue?](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43s4j4?context=5)|I just buy for the left side. For the most part i wear dickies work shirts and jeans. As odd as it sounds i buy urban labels as they actually fit me a heck of a lot better. |Http://i.imgur.com/GLYPS.jpg typical day of dress. [Wow. Honestly If I saw you on the street, I would never be able to tell. Maybe some mild suspicion on "that guy looks a little weird."](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43shwj?context=5)|Thats why i dress the way i do. A lot easier than trying to explain to everyone you meet. [What about shoes? Are your feet the same size?](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43shwj?context=5)|I could wear a smaller shoe on my right foot but thats more money than i would want to spend so i wear the same and just pad the right shoe a tiny bit so my toes arnt flopping about. [It's nice to see a couple of dudes feel comfortable with a "you're looking good, bro". It's a nice day today.](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43xe5w?context=5)|I find that there really isnt any reason two dudes couldnt say they look good. [Agreed, you look both normal and attractive based on societal norms and preferences of north america - Congratulations on your effort.](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43wfjc?context=5)|Sadly I must say that even in north america no one loves fat dudes. Though normal yeah. [Im just gonna upvote... all of this I think.](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c4401gx?context=5)|Well thank you for the upvotes! Here is one for you! [Not gonna lie, I prefer my men chubsy, they're way better for cuddles and tend to be less douchey (no offense to any slim non douchebags, I know you exist)](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43wp01?context=5)|My god I am a cuddle whore. I dont care who you are just get over here and cuddle while we watch crappy scifi. Dont know why just something i really enjoy. Sexual or not. [Not trying to be a dick but has anyone ever called you Biggie Smalls?](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43xvv4?context=5)|Well my dream was to become a rapper and use that name but sadly that was already taken. [Which side does your wang resemble? The big leg, of the little leg?](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43unhk?context=5)|Honest answer. See for yourself: [penis](http://i.imgur.com/7pu1p.jpg) |For those who do not click its just a pretty average sized penis with too much foreskin. It works for me. [You have won IAMA. A picture of your fucking dick. Awesome. Just awesome. ](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43xq6e?context=5)|Wait do other people not post pictures of their dick? What about that aziz guy? [I don't know what I expected.](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43w3wx?context=5)|Im not sure if there could have been any more warning. [I'm a straight guy. It's a penis. ](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43vth8?context=5)|It sure is buddy. It sure is. [I was quite curious about this too, and surprised to see that you actually answered with a pic. Looks pretty normal to me, and I've seen a lot of them, haha. ](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43wbcc?context=5)|Thank you. I hope there is someone out there who has been researching this for their whole career and never found a living person with it and somehow they find this thread. One can dream. [It takes major balls to do something like this. Props to you (not just for the pic, but the whole AMA), and I hope you find the specialist you're looking for. ](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43wbcc?context=5)|And yeah its pretty normal. Works pretty good and never had any complaints about it. Its not the biggest but I have learned to use my mouth pretty damn well so it evens out. [That was a ballsy move posting a picture of your dick on reddit, but it seems like you make no bones about it. ](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43xy07?context=5)|Just my penis. [I am SO curious. But not curious enough to click on that link. I'm fairly disappointed with myself.](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43xhh9?context=5)|Dooooo eeeeeeeeeeeet [My friend was demanding that I PM you and offer naked pictures of myself to get you to show us your dick... she's drunk so thanks for helping me avoid a ridiculous argument.](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43ykz1?context=5)|No problem! Though ill stick take the naked pics... [Hey man, I'll take some of that foreskin for you. They stole mine when I was baby.](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43yra2?context=5)|:( thats sucks bro. Ill gladly donate some to you. [Yup, /r/gaybears would still be all over that. ALL OVER IT.](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43z6by?context=5)|Might just have to make a visit... [Too much foreskin in your opinion, but a gold mine to a person who is really into foreskin. There's a lid for every pot.](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c441jnl?context=5)|That is very true. [Lots and lots of upvotes for yoooou. Like so many others have said, thanks for this AMA! Very educational, witty and interesting. :)](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43ybfz?context=5)|Thank you. Glad you have enjoyed it. [Aziz probably can't compete with your girthy member. ](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43z9ft?context=5)|I now know what im going to tell someone famous that has done an AMA. |"So i posted my dick why didnt you?" [I was secretly hoping for a picture of some cuddly corgi puppies.](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43yrk4?context=5)|I think thats what we all hope for. [Is your tongue or any of you internal organs smaller on one side? Like a bigger lung on one side? Or does it just affect skeletal muscle? ](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c44164v?context=5)|Left side of tounge is larger than the right as well. It doesnt seem to be longer but its definatly thicker. [Where and how do you meet women?](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43ye8n?context=5)|First girl i met was through a group i was a part of. Waaaaaay outta my league but she liked me. It ended because i was a fucking moron who latched on to the first thing that showed interest in me but now we are damn good friends and i have amazing memories of her. [How many relationships have you had?](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43ye8n?context=5)|Second was through work. [What was your longest one?](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43ye8n?context=5)|No real long term relationships yet but i dont mind much. Im sure there is someone out there who will find me and such. [He was talking about your dick.](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c4455wl?context=5)|I know ;) ["If you can make a girl laugh, you can make a girl do anything" -Marilyn Monroe.](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c440pry?context=5)|This is more true than people seem to realize. [I have never heard of this before. So you haven't seen a specialist, does that mean that you self diagnosed? (not questioning your diagnosis) Also, what is you reason for not seeing a specialist? You seem fairly open about your condition on here.](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43rtot?context=5)|No i was diagnosed as a baby but after age 12 due to various reasons and such i never saw a doctor again. Besides my pediatrician I am not sure if there even is a specialist that deals with stuff like this. [A brother welder, nice to meet you. I'm a Boilermaker in the 906...](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43tiv1?context=5)|Non union welding atv and utv frames. I couldnt work for a union again. I was a teamster in high school and got fucked pretty good. [Would you consider seeing a specialist now that you are older? I'm pretty sure SOMEONE out there knows this stuff.... Also, I wasn't assuming that you would want to see a specialist for looks, I was meaning more for your long-term health!](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43uevk?context=5)|Oh I sure would see someone if i could find someone. Im actually damn afraid of what could go wrong with me. Being a fairly rare thing who knows what could go wrong. [Although, now that I think about it, looks might be something you would be interested in talking to them about.](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43uevk?context=5)|If i could find some young doctor who wanted to make something of his career by publishing an exciting new topic and not charging me for it I would be all over it. [Please don't judge all unions by the Teamsters. The Laborers and Steelworkers unions where I work do great by the workers. ](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43u0b8?context=5)|Oh im sure. They just left a really bad taste in my mouth. But the company i work for now takes care of us for non union factory work. Im not against unions just have been able to get along just dandy without em. [Does this condition effect your eyes? (is your left eye larger?) If so, can you see better/farther with your large eye?](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43rw74?context=5)|The left eye is a tiny bit bigger but the vision is the same in both. [How did this affect your upbringing and your romantic life?](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43s9eh?context=5)|I grew up hating myself for a very long time. On top of looking like i do i grew up white in heavy heavy heavy hispanic neighborhoods. I never had friends for a long time and was pretty much a social outcast. |It wasnt until highschool when i met gothkids and found a group that loves freaks that i actually had friends and learned to accept myself for what i look like. These days im very comfortable with things and have a good assortment of friends. |Romantic wise though its a little slow. I didnt lose my virginity till i was 20 and still have a hard time getting close to people in a physical setting. I have had a couple good relationships on both sides of the gender aisle but never anything serious. [Dude 20 is not that late to lose your virginity... hell you're doing way better than a larger percentage of the people on here. ](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43tztx?context=5)|That's true. Considering for the longest time i didnt think i would ever have a chance with anyone i guess im doing okay. [I personally think 20 is a perfectly appropriate age to lose your v card. You're doing a lot better than lot of Redditors. :P.](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43vwuy?context=5)|I try. Same as on the threads I made on 4chan. I did it. You can too! [I love it that you gave props to the gothic community. We are all outcasts with emotional scars, so most of us are very willing to give everyone a chance. Freaks we are... All of us. Much love. ](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43v9s8?context=5)|They are some great people. Some bad apples same with any other group but as a whole a great group of people. ["-I have had a couple good relationships on both sides of the gender aisle but never anything serious. " Are you bi then?](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c442orz?context=5)|I am. [Oh no, I'm a tramp. Lost it to my HS boyfriend at 18. :O ](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43w300?context=5)|YOU HUSSY! /s. [Are you two people that were fused as embryos?](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43vwpj?context=5)|God I hope not. That would be a bit too creepy even for my standards. [You should tell people that's what happened though. Say that your two sides are vying for dominance and then change voices and shout at yourself.](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43yymn?context=5)|If i ever go crazy i hope its like that. [Hey, I work in Genetic Medicine at a university medical school. I can scout around for some literature tomorrow, see if I can find anything you might find useful?](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43v0wg?context=5)|That would be awesome, thank you very much. If you need any specific information feel free to PM me. [No worries. I might forget so feel free to prompt me. It's so easy for us to see papers and reports that it's kind if sad to realise that this stuff doesn't always get to those who might need it!](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43v8it?context=5)|Well if you forget its no big deal. It would be nice to know if there has been anything published on it though. [Has there been any evidence that people with Cutis marmorata telangiectatica congenita and extreme body asymmetry have a shorter life expectancy than the average person? Are organs larger/smaller? Does this affect your heart at all? lungs? Or subject to increased risk of disease or anything? I hope this isn't too personal.](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43tp3q?context=5)|No idea. I havent been able to find any study about anyone with it older than myself. I know that my lung is larger than the other. Im not sure on other things such as kidneys or intestines and the such but im sure they are. I have an increased risk of ulcerations on my legs which is something that i am currently dealing with. I have had a wound which has yet to heal fully after nearly two years. Not a damn thing i can really do about it except wait. |Almost no such thing as too personal in this thing. Im here to answer what people ask to the best of my ability. [Wouldn't an asymmetrical brain fuck shit up? ](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c44j0ln?context=5)|Maybe maybe not. [I mean, if your non-healing wound has something to do with your condition then I don't know how this would work. But for a little while a while back, I worked for a company that makes synthetic living skin that grows onto you and heals your pervasive wounds. Fucking science, right?](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43wiuv?context=5)|Holy shit thats awesome. Thanks for that link. Im going to see if i can get me some of that science. [Have you been tested for diabetes? May be a part of why your wound won't heal. ](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43xui3?context=5)|I have and *thankfully so far* i do not have it. [Does your smaller side get fatigued earlier than your larger side due to the muscle and bone differences? also, has the condition gotten more or less exaggerated with age? thanks :) ](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43sepi?context=5)|Not really. I work with both my hands so they stay pretty even in terms of endurance. |The skin has stayed pretty much the same since puberty. The asymmetry though has gotten a bit worse especially as i have been working towards losing weight which has only seemed to have been lost from the right side. [That's crazy that the weight only gets lost from the right side. Does working out to build muscle help make the asemetery better or do the small bone structure make it impossible to ever get it to match better?](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43uqqz?context=5)|As far as i can tell i will never be able to get it to match. Just bone size alone will keep it at odd sizes. I tried to get a picture of my neck to show the difference in just the collar bone and shoulder height but cant seem to get one right. [I'm glad to hear you don't let this disorder ruin your life. It's not easy pulling yourself out of depression to improve your life. ](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43vd3v?context=5)|Really think someone needs to write a book that is given out to all 13 year old titled "the next 5 years are going to fucking suck. Enjoy!" that explains that once you get out of high school things are better. [Do you jerk off with your big hand or your small hand? ](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43sf21?context=5)|I switch off every now and then. sometimes you have to keep clicking and hard to do with the left hand. [Do you have to buy two different shoe sizes? If so, what size is each foot? ](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43sf21?context=5)|No 14EE on both feet. waste of money to buy two different sized shoes. otherwise i could get away with a 12 on the right. [Is one side of you taller than the other, or just more girthy? ](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43sf21?context=5)|The left side for a long time was taller but i had a surgery when i was 12 that removed an inch of bone from my femur and put in staples on the growth plates of the tibula and fibula to slow down the growth for them to even out. For a long time there was a 3 inch difference in length. [Could you get like half your body liposuctioned so the difference isn't so great? Was that fucking retarded? It seemed fucking retarded.](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43vml9?context=5)|Cost a lot of money that i dont feel like spending on that. It would help the fat layer but the muscle and bone would still keep it uneven. |No stupid questions here. [We have a TV programover here in the UK called 'embarrassing bodies' it's a bit of a misnomer as you shouldn't be embarrassed but it's a good, medically accurate (it's presented by three doctors), informative and entertaining show. Have you heard of it? I believe they are in America, thought of applying to appear on it? @doctorchristian is one of the presenters if you wanted to look him up on twitter?](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43wp6s?context=5)|Sadly out of principal I dont use twitter but if you want to tweet him this thread I would love to hear from them if i cannot get ahold of them on email. [How does this condition affect clothes shopping? Do you have to have things specially tailored or are you able to find things in regular stores? Thanks for being so brave with the full body shots, too. It really gives more information about what you're dealing with!](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43tdbl?context=5)|Doesnt really affect shopping for clothings. As i said in another post i tend to buy a litte bigger than i need as it helps hide fairly easily. This is a typical day of dress for me. [Link to i.imgur.com](http://i.imgur.com/GLYPS.jpg.) [Does this affect your balance at all?](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43tdbl?context=5)|I cant balance on my right leg at all. Like not even close to even pretending to be able to. [Wow, look at how this thing took off! How great. I'm glad you got to share your story with so many people! Told ya you should try again! ;)](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c44dhea?context=5)|Ya glad i did it again. Thanks for coming by to read it! [No problem! Be sure to do an update if you end up seeing a specialist or anything, I find this so interesting! :)](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c44nnpv?context=5)|I sure will! [Why have you never seen a specialist to see if there is treatment?](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43rtjy?context=5)|Never found one. Only 200 reported cases according to wikipedia, so finding a specialist is a bit hard. [As someone in the dental field, I gotta ask whether the teeth in the 2 right quadrants are radically different from the teeth in the 2 left quadrants. Also, does it likewise affect your tongue?](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43w1ej?context=5)|Shameful answer. |I havent been to a dentist since 12. I had a bit of a terrifying experience and am now a total pansy when it comes to someone putting their hand in my mouth. As far as i know my teeth are where they are supposed to be in my mouth but honestly I cant answer this one for you. |Though I can say that the left side of my tongue is larger than the right same with jawline and skull. [Is there any reason that you haven't seen a dentist or doctor in over a decade? For both medical and dental problems, prevention is always much easier than dealing with pain after the fact.](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43w4q5?context=5)|For the dentist when you have a 90 year old man with his hands in your mouth go and die on you. Well you tend to be scared for life on that. I try and keep on my teeth by brushing, flossing and the like but i know i really need to get some work done. Also I dont have dental insurance and up here in rural minnesota there isnt much in the way of low cost health care. [**when you have a 90 year old man with his hands in your mouth go and die on you**](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43xp6p?context=5)|I will never forgive my father for making me go to his childhood dentist. [Um. Sex life?](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43vm1t?context=5)|Three partners, two women one man. Women were waaaaaaaaaaaaaaaaaaay out of my league but somehow it happened. Guy was right in my league. |Sex life is not active but when i can get over my issues and get close enough to someone it happens. [Who's your favorite fictional detective? ](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43tben?context=5)|Dick Tracy. [My brain can't comprehend this... It's like.. You're fat and fit at the same time. It's.. brain keeps malfunctioning. I just wonder, what would happen if you got fit?](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43y68o?context=5)|I would be swarming with women so much that minnesota would sink from the weight and cause catastrophic damages to the earth. [Your face looks unaffected. Is it? How about your eyes/vision? Thanks for this AMA.](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43wcm9?context=5)|No right down the middle as well the left side of my skull is larger than the right. Its a bit less noticeable when you look at it, but if you were to feel my head then its very very noticeable. [What's worse? Living with the disease, or trying to remember how to spell it? Just kidding of course. Sorry for your misfortune. It must take a lot of courage on a daily basis. I hope things improve for you.](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43xhd2?context=5)|Hell 23 years later i still cant even pronounce it. [A friend of mine said your tummy looked like a sad elephant. I laughed, hopefully you will too.](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43yptr?context=5)|I giggled. [How much of your life is this condition? Is there ever a day where you don't think about it at all?](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43yptr?context=5)|I dont really put much effort into thinking about it anymore. If someone brings it up i tell them. If im getting close to someone i warn them ahead of time and let them decide if they are comfortable with it or not but it doesnt take up much of my thoughts. [So which side is the evil side?](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43yi8d?context=5)|Well the right side touches me a lot... [When did these irregularities in your body start to manifest themselves? have they always been around or did it develop as you were growing?](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c4450t4?context=5)|Right from birth there was a noticable difference. As i got older it became more pronounced until i am how i am today. [I once met a girl at Spring Break Cancun who had an asymmetry - Her body was freckled on the left side and completely clear on the right, in an exactly perfect line down the middle of her body. She was gorgeous and I did not ask about it. But your AMA made me think about her - have you ever heard of your "disorder" displaying itself like this? Or is this something completely different?](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c445efp?context=5)|Well really i havent heard much about my disorder anywhere. Its a fairly rare thing. But if my body can do what it doesnt im sure a body can do half freckled as well. [I would like to start by saying that I have the utmost respect for you for doing this. But I imagine that people could be quite cruel about your condition, especially when you were growing up. How did/do you deal with that? In the photo you posted of your everyday clothes you kinda just look like a slightly overweight man, but do you ever go to the beach/pool? What do you wear there? And do people stare? Thank you :)](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c444r97?context=5)|I was a recluse as a kid for the most part. I was never confrontational about it and just sort of sulked away. It was just the easiest way to deal with it. |I do go every now and then and i just give no fucks about it. Worst that happens is someone points and stares. Doesnt bother me anymore. [Left handed or Right Handed? If your left side is larger, does that mean its stronger or just...bigger...? Meaning, if you got really angry, you would want to kick someone in their symmetrical balls with your left leg.](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c4455c2?context=5)|Right handed though there is a lot i do with my left still. My left side is stronger than the right. Im not sure on arms but i know on leg press my left leg can do about 3x what the right can. |I try not to get angry but yeah if i wanted to kick someone it would be with the left. The crates at work have felt my wrath before when they didnt want to collapse correctly. [Thanks for sharing. Do you have any photos of you as a kid that you could share?](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c44f6mr?context=5)|I'm waiting on my dad to send me some. I have no photos myself. [Your nether bits you say? Could we see a pic FOR SCIENCE? ](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c443xfy?context=5)|They are already on here. Go look! Itll be fun. [Damn it I'm late but have you ever considered being a nude model at an art school? It would be pretty interesting to draw someone with an asymmetrical body and tattoos like that.](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c44cdkm?context=5)|Actually I have had someone contact me asking to model. I sent off some poses and wished her the best. If anyone else would like to they are free to contact me as well! [Awesome back tattoo. I don't know much about this or i'd have advice on a specialist. If there's any question i'd like to ask, how's life? Best wishes and thanks for the awesome AMA.](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c444o8i?context=5)|Life is pretty good. I have a good job, decent friends, my own place and can afford to take care of myself more or less. How is yours? [Silly question, do you have circulation problems? I am just wondering about how the heart handles the differences in the different sizes of arteries.](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c443ti7?context=5)|I do in a bit in my toes but i dont know if thats from breaking them every five minutes or from this. [What everyday activity would you say is most difficult or awkward because of your condition? Also, I commend your confidence in sharing this with us :) ](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c44cw88?context=5)|Nothin is really too difficult. I have to concentrate on my walking if I want to keep my gait even. [Does this condition make lying on your stomach uncomfortable while sleeping etc?](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c44831e?context=5)|Nope not at all. Just like laying on a beanbag chair [What do you wear in hot weather?](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c44kh4k?context=5)|Same thing year round. I don't wear shorts. [Just wanted to say that it takes a lot of balls for anyone to put their picture up on Reddit - let alone, when someone has a medical condition. Props, wally. Talk about "not a single f*ck was given"](http://www.reddit.com/r/IAmA/comments/r8ib4/i_am_a_23yr_male_with_a_rare_disorder_called/c43w06d?context=5)|Ill give ya one better there. I posted this same thread, more or less, to 4chan last week. I just have learned to accept myself and an okay with sharing with whoever wants to know. *Last updated: 2012-03-26 22:58 UTC* *This post was generated by a robot! Send all complaints to [epsy](/message/compose/?to=epsy).* more